Homecoming!!

After 64 days in the hospital Scott has finally come home. The course of IV antibiotics is finished. An upper GI test was normal. Oh, and his heart is just fine. Now we just need to get him off the feeding tube, but that's a nice problem to have. We now trade trips to the hospital for sleepless nights, but are happy about it.

We want to thank everyone for all their love and support during the past few months. We couldn't have made it through without you.

Love,

Phil, Mindy, Will and Scott

Almost home...

Hi all. Sorry about the delay between postings. Scott's schedule has become fairly routine and normal - eat, sleep, poop repeat... His IV antibiotics finish today and after a few tests we hope to bring him home on Friday. He is still not getting enough food through the nipple or bottle so he will still have a feeding tube. We hope he won't need it for too long. We long for the normal routine of feeding, sleeping and changing without the monitoring lines and IV. Life in the hospital has gotten pretty old, especially for Mindy, who has spent many hours a day there making sure Scott gets what he needs. She has been amazing.

Hopefully our next post will be about life at home. Thanks again for all your support.

Phil, Mindy, Will and Scott

Snuggle Bug

This photo was taken by Phil's brother about a week ago - Scott loves having his right hand up by his ear. He must have been that way in utero!